Our Story 

After receiving the dreadful news that JB was afflicted with Duchenne Muscular Dystrophy, his family decided they could not accept the future that was being offered. Shortly after the diagnosis, JB's Keys to DMD was founded on JB's 2nd birthday, as a gift of their commitment to change JB's future. It has become Beth's life mission to make a difference, not only in JB's life, but in all boys with DMD and their families. 

​To date, JB's Keys has raised over three million dollars to support research, advocacy, clinics, conferences, and quality of life experiences. With each passing year, as JB gets older and DMD takes its toll, our organization grows stronger and our vision clearer to the ongoing and unmet needs of so many boys and families. 

​Our success is ALL due to the amazing support of the board, volunteers, and donors like you!

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Board of Directors

​Brian Akashian, Legal Counsel
Amanda Becker, DMD Parent 
Emily Cunio Duffy
Caitlin Fawcett, MD
Elizabeth Woelfel Harvey, Executive Director
Kelly Honohan, Secretary
Caroline Phelan Leto
Hermine Shusda
Tara Spalding
Monica Woelfel Stevenson
Kathy Hall Trull
Stephen Woelfel, Jr., Vice Chair