About Us


Founders

Our names are Beth and Jeff Harvey and we want a healthier life for our son.  To assist us in achieving our goal we founded JB's Keys to DMD on JB's 2nd Birthday.


The beautiful and funny 4 year old in these pictures is our son JB.

He has Duchenne Muscular Dystrophy (DMD).

  • One in 3,200 boys are diagnosed with this disease.
  • It does not have any race or cultural preference.
  • DMD is the leading genetic killer of boys.

Why do people not know about this disease?

First Key: Awareness



  • Boys with Duchenne are confined to wheelchairs between the ages of 8 and 12.
  • They suffer cardiac and pulmonary complications in their late teens.
  • They succumb to this disease by their early twenties.
  • The only universally accepted medical treatment is a corticosteroid regimen. 
  • This treatment only delays the inevitable.

Why is there not enough focus on quality of life?

Second Key:Fund Quality Care & Treatments


  • There are not enough people looking for a cure.
  • The MDA covers over thirty diseases of the muscles and gives less than 5% of their funds to DMD research. 
  • Historically drug companies can not make a profit from research done only for Duchenne and often lose interest or shift their focus.

What can be done to support dedicated Duchenne researchers searching for a cure?

Third Key:Fund Advancing Research For A Cure


Board of Directors


  • Brian Akashian, Legal Counsel
  • Emily Cunio Duffy
  • Michael Elkas, Finance Chair
  • Elizabeth Woelfel Harvey, Chair
  • Jeffrey Harvey, Jr.
  • Caroline Phelan Leto
  • Kelly O'Neil
  • Monica Woelfel Stevenson, Secretary
  • Kathy Hall Trull, Treasurer
  • Stephen Woelfel, Jr., Vice Chair


Advisory Board

  • David K. Stevenson
  • Dr. Brian Tseng
  • Fred Sculco



We are a 501c3 charity dedicated to increasing awareness of  Duchenne Muscular Dystrophy (DMD) while appropriating funds for quality care and research that will create treatments for DMD, ensuring affected children will have the opportunity of a lifetime.

Click here to see our IRS Determination Letter.

 

JB's Keys to DMD is now a member of: