How We Unlock The Doors

First Key: Awareness

  • Educate others about DMD though gatherings and social media
  • Support other organizations dedicated to raising awareness of DMD


Second Key: Fund Quality Care and Research

  • Support The Pediatric Neuromuscular Clinic at MassGeneral Hospital for Children
    • Provides quality medical treatment while practicing bench to bedside research
  • Fund Lung Function Study
    • JB's Keys provided equipment necessary to research the rate of lung function decline and look into what can be done to stem that tide
  • Fund Bone Denstity Study
    • A study researching the effects of steroid use and DMD on bone strength
  • Fund Sleep Study
    • Sleep issues are a major concern in the DMD community and this will be of great benefit on the health and quality of life of young men with DMD
  • Fund Stander Wheelchair Study
    • Investigating the benefits of utilizing a stander wheelchair
    • There were impressive results as well as stories of how the young men felt much more engaged in family life being able to do things such as cook
  • Fund Research of FDA Approved Drugs
    • JB's Keys has teamed with other organizations to help support the research of already approved FDA drugs that may benefit DMD
    • At this time this is the most promising way to get treatments to boys quickly


Third Key: Fund Advancing Research For A Cure

  • Member of The Duchenne Alliance
    • A group of independent Duchenne organizations able to advance research faster then anytime before

We are a 501c3 charity dedicated to increasing awareness of  Duchenne Muscular Dystrophy (DMD) while appropriating funds for quality care and research that will create treatments for DMD, ensuring affected children will have the opportunity of a lifetime.

Click here to see our IRS Determination Letter.

 

JB's Keys to DMD is now a member of: